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The riveting true story of John and Aileen Crowley's race to find a cure for Pompe disease that inspired the movie Extraordinary Measures
With three beautiful children, a new house, and financial security, John and Aileen Crowley were on top of the world—until their two youngest children, fifteen-month-old Megan and five-month-old Patrick, were diagnosed with Pompe disease and given only months to live. Refusing to accept a death sentence, John quit his financial consultant job and invested his life savings in a biotechnology start-up to research the disease and find a cure. Battling scientific setbacks, conflict of interest accusations, and business troubles, John and Aileen would be tested to their limits as they valiantly fought, and succeeded, in finding revolutionary new treatment for the disease—offering hope to Megan, Patrick, and the many children and families affected by Pompe disease around the world.
The inspiration for the captivating film Extraordinary Measures, starring Brendan Fraser and Harrison Ford, The Cure is a remarkable true story of cutting-edge science, business acumen and daring, and one family's indomitable spirit.
著者について
Geeta Anand is a Pulitzer Prize-winning investigative reporter and feature writer for the Wall Street Journal. Formerly a political reporter for the Boston Globe, she now specializes in health care, education, and environmental challenges in India. She lives in Mumbai with her husband and two daughters.
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21件のカスタマーレビュー
18 人中、18人の方が、｢このレビューが参考になった｣と投票しています。
It makes you think and it makes you care
2006/10/14
形式:ハードカバー
This wonderful book has a lot of emotional depth and complexity. John Crowley, the young father, is brash, brilliant, arrogant, and ignorant. He makes personal mistakes and business mistakes, yet you remain drawn to his story by empathy for his desperation as he fears that his small children will suffer a slow painful death. It's an honest and interesting portrait of a real human being, not a one-dimensional hero.
It's not really a business book and you don't need any familiarity with venture capital financing to understand the text, but John Crowley's business provides the book with a fascinating emotional contrast between his frantic urgency as a parent and the dispassionate PowerPoint analyses expected by his investors. They share a common goal, but the mindset is completely different.
It's not really a science book, but the drug development process adds to the story's drama. There's no Eureka! moment when all the problems are solved. Patients are desperate for anything they can get as soon as they can get it, but the science is ambiguous, the bizarre biotechnology manufacturing processes are difficult to operate, and then the clinical trial results are uncertain. An experimental compound might kill a young patient, or bring quick improvements that fade over time, or have different impacts on different patients. And even with these uncertain prospects there's strong competition among parents for the extremely limited number of places in trials.
One of the most appealing aspects of the book is the author's light touch. She never puts herself or her opinions into the story. The book ends with an Afterword relating events subsequent to the basic text, but the author doesn't seize pages to tell us what it all means. At the end I found myself wondering, "Well, what does it all mean?" I looked up Pompe disease information on the internet, wondered what people in the Pompe "community" thought about the book, and wanted to know how the science has progressed. The book makes you think and it makes you care.
It's not really a business book and you don't need any familiarity with venture capital financing to understand the text, but John Crowley's business provides the book with a fascinating emotional contrast between his frantic urgency as a parent and the dispassionate PowerPoint analyses expected by his investors. They share a common goal, but the mindset is completely different.
It's not really a science book, but the drug development process adds to the story's drama. There's no Eureka! moment when all the problems are solved. Patients are desperate for anything they can get as soon as they can get it, but the science is ambiguous, the bizarre biotechnology manufacturing processes are difficult to operate, and then the clinical trial results are uncertain. An experimental compound might kill a young patient, or bring quick improvements that fade over time, or have different impacts on different patients. And even with these uncertain prospects there's strong competition among parents for the extremely limited number of places in trials.
One of the most appealing aspects of the book is the author's light touch. She never puts herself or her opinions into the story. The book ends with an Afterword relating events subsequent to the basic text, but the author doesn't seize pages to tell us what it all means. At the end I found myself wondering, "Well, what does it all mean?" I looked up Pompe disease information on the internet, wondered what people in the Pompe "community" thought about the book, and wanted to know how the science has progressed. The book makes you think and it makes you care.
15 人中、14人の方が、｢このレビューが参考になった｣と投票しています。
Excellent Book About an Inspiring Family Story
2006/9/5
形式:ハードカバー
As a father myself, I was incredibly moved by this book. It's an inspiring story about the things parents will do for their children. The writing is effortless, vivid and sensitive - you go through the Crowley's ups and downs with them from chapter to chapter, and you cannot stop until you have finished the entire book. I never thought reading about biotech firms could be this enoyable either - the author does an excellent job of taking you into world of biotech and venture capital and making it at once interesting, informative and easy to understand.
This is simply a great book about a family's incredible, heart-wrenching story. A must read for all, especially for parents (and would be entrepreneurs).
This is simply a great book about a family's incredible, heart-wrenching story. A must read for all, especially for parents (and would be entrepreneurs).
15 人中、14人の方が、｢このレビューが参考になった｣と投票しています。
A great story of where business and family collide
2006/9/4
形式:ハードカバー
Kudos to this story of John Crowley's unbelievably ambitious, frequently frustrated and sometimes ethically reckless effort to find a cure for the fatal disease that afflicts two of his children.
This book's perfect pacing and lean, utilitarian prose treats a tale that could have been as saccharine as a Lifetime movie as an unremittingly suspenseful thriller as Crowley has to balance his fiduciary responsibilities as the head of a biotechnology firm with his pressing need to get his children into a clinical drug trial before they die.
It's a predicament that makes Sophie's Choice seem like a simple dilemma to resolve, but the author effortlessly weaves the complex world of biotechnology research and venture capital into a family story that any parent could identify with. It reminds me of David Simon's Homicide or Jon Harr's Civil Action.
Crowley may now be a rich man, but it's uplifting to read about a CEO driven to succeed -- even if it means bending the rules -- by motives far more moral than the soul-sucking avarice that dominates Wall Street today.
This book's perfect pacing and lean, utilitarian prose treats a tale that could have been as saccharine as a Lifetime movie as an unremittingly suspenseful thriller as Crowley has to balance his fiduciary responsibilities as the head of a biotechnology firm with his pressing need to get his children into a clinical drug trial before they die.
It's a predicament that makes Sophie's Choice seem like a simple dilemma to resolve, but the author effortlessly weaves the complex world of biotechnology research and venture capital into a family story that any parent could identify with. It reminds me of David Simon's Homicide or Jon Harr's Civil Action.
Crowley may now be a rich man, but it's uplifting to read about a CEO driven to succeed -- even if it means bending the rules -- by motives far more moral than the soul-sucking avarice that dominates Wall Street today.
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