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商品の説明
内容説明
Half a million babies are born prematurely in the United States every year. In this gripping medical narrative, Dr. Adam Wolfberg brings readers into the complex world of newborn intensive care, where brilliant but imperfect doctors do all they can to coax life into their tiny, injured patients. As a specialist in high-risk obstetrics and the father of a child born prematurely, Wolfberg explores the profound questions raised by such fragile beginnings, both from the front lines of the NICU and from his daughter’s bedside.
His daughter Larissa was born weighing under two pounds, and he describes the precipitous birth at six months that left her tenuously hanging on to life in an incubator. Ultrasound had diagnosed a devastating hemorrhage in her brain that doctors reasoned would give her only a 50 percent chance of having a normal IQ. Through Larissa’s early hospital course, Wolfberg examines the limitations of newborn intensive care medicine, the science of “neuroplasticity,” and the dilemmas that surround decision making at the beginning of life.
Wolfberg also takes us into the lab where researchers are working to improve the futures of children born too soon. He follows a young scientist, Jason Carmel, who was inspired to study how the brain adapts to injury when his twin brother was paralyzed in an accident. Through lucid medical reporting, Wolfberg details current scientific practices and discoveries, and explores the profound emotional and ethical issues raised by the advancing technology that allows us to save the lives of increasingly undeveloped preemies.
As they make decisions about life-saving care in the first hours of a premature infant’s life, doctors and parents must grapple with profound moral and medical questions: How aggressively should doctors try to save the life of a premature baby, who will be severely neurologically and physically impaired? What might that child’s quality of life be like after millions of dollars are spent on her care? Wolfberg traces the fits and starts of the physicians, government policy makers, and lawyers who have struggled over the years to find the best way to make these wrenching decisions. Written from Adam Wolfberg’s unique experience as a reporter, as a medical specialist and researcher, and as the father of a prematurely born daughter, Fragile Beginnings lays bare the struggles, discoveries, and triumphs of the newborn intensive care unit.
His daughter Larissa was born weighing under two pounds, and he describes the precipitous birth at six months that left her tenuously hanging on to life in an incubator. Ultrasound had diagnosed a devastating hemorrhage in her brain that doctors reasoned would give her only a 50 percent chance of having a normal IQ. Through Larissa’s early hospital course, Wolfberg examines the limitations of newborn intensive care medicine, the science of “neuroplasticity,” and the dilemmas that surround decision making at the beginning of life.
Wolfberg also takes us into the lab where researchers are working to improve the futures of children born too soon. He follows a young scientist, Jason Carmel, who was inspired to study how the brain adapts to injury when his twin brother was paralyzed in an accident. Through lucid medical reporting, Wolfberg details current scientific practices and discoveries, and explores the profound emotional and ethical issues raised by the advancing technology that allows us to save the lives of increasingly undeveloped preemies.
As they make decisions about life-saving care in the first hours of a premature infant’s life, doctors and parents must grapple with profound moral and medical questions: How aggressively should doctors try to save the life of a premature baby, who will be severely neurologically and physically impaired? What might that child’s quality of life be like after millions of dollars are spent on her care? Wolfberg traces the fits and starts of the physicians, government policy makers, and lawyers who have struggled over the years to find the best way to make these wrenching decisions. Written from Adam Wolfberg’s unique experience as a reporter, as a medical specialist and researcher, and as the father of a prematurely born daughter, Fragile Beginnings lays bare the struggles, discoveries, and triumphs of the newborn intensive care unit.
著者について
Adam Wolfberg, MD, MPH, is a specialist in high-risk obstetrics at Tufts Medical Center and an assistant professor at Tufts University School of Medicine. He was formerly a research fellow and faculty member in the Department of Neurology at Harvard Medical School. His research into fetal brain injury is supported by grants from the National Institutes of Health and private foundations. Wolfberg has been a contributor to Newsweek, the Chicago Tribune, Slate, WSJOnline, and the Boston Globe Sunday Magazine. He is a physician spokesperson for the March of Dimes.
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8件のカスタマーレビュー
8 人中、8人の方が、｢このレビューが参考になった｣と投票しています。
Excellent read for those intersted in babies, preemies or medicine.
2012/2/12
形式:ハードカバー
Though not a book most expectant mothers should add to their reading list, Fragile Beginnings provides insight into the difficult decisions that clinicians and families must make when working with these tiny, fragile babies.
What does quality of life mean to a parent desperate to hold their only baby? Should extraordinary means be used for babies on the very edge of viability? What is the NICU experience like for parents? What supports and care considerations can help parents and babies?
With one out of ten babies born prematurely in the US, these are important (and expensive) topics to consider. Dr. Wolfberg offers a unique perspective by sharing both personal and professional experiences, making this book especially valuable and compelling.
Nancy Holtzman RN BSN IBCLC RLC
What does quality of life mean to a parent desperate to hold their only baby? Should extraordinary means be used for babies on the very edge of viability? What is the NICU experience like for parents? What supports and care considerations can help parents and babies?
With one out of ten babies born prematurely in the US, these are important (and expensive) topics to consider. Dr. Wolfberg offers a unique perspective by sharing both personal and professional experiences, making this book especially valuable and compelling.
Nancy Holtzman RN BSN IBCLC RLC
8 人中、8人の方が、｢このレビューが参考になった｣と投票しています。
Fascinating!
2012/2/10
形式:ハードカバー
Wolfberg gives an account of the NICU and the broader issue of medical ethics from the perspective of both a doctor and a parent. His writing is clear and the topic is fascinating. I highly recommend this book, even if you don't think you're very interested in medical ethics or neonatal care. This book will MAKE you interested!
5 人中、5人の方が、｢このレビューが参考になった｣と投票しています。
A book for physicians, nurses, midwives and families of preterm babies
2012/2/19
形式:ハードカバー
Fragile Beginnings, by Adam Wolfberg, starts off with a bang. The author's wife, Kelly, goes into preterm labor in the very hospital where the he works as a first year Ob/Gyn resident. Despite their education and training (Kelly is working toward her PhD) they are as devastated and scared as any parents could be.
Knowledge is not control and things are moving fast. It only makes it worse that Adam knows the medical lingo and knows the possible disabilities that a baby born at 26 weeks could have. The usual IV medications can't stop the contractions; Kelly's water bag breaks; plans move ahead for an emergency C-section and then....well you'll just have to read the book.
Interspersed with the author and his family's experience in the NICU, is the history of the techniques for the care of premature infants and those who pioneered them, including the fascinating theory of neuro-plasticity. If you know what that means, you will want to know more. If you don't....well, you'll just have to read the book.
This is a family drama, an education in medical progress and an inspiring story about a courageous little girl named Larissa. If you are medically-minded, what else could you want in a weekend read?
Patricia Harman CNM MS, nurse-midwife and author of Arms Wide Open: A Midwife's Journey Arms Wide Open: A Midwife's Journey and The Blue Cotton Gown The Blue Cotton Gown: A Midwife's Memoir
Knowledge is not control and things are moving fast. It only makes it worse that Adam knows the medical lingo and knows the possible disabilities that a baby born at 26 weeks could have. The usual IV medications can't stop the contractions; Kelly's water bag breaks; plans move ahead for an emergency C-section and then....well you'll just have to read the book.
Interspersed with the author and his family's experience in the NICU, is the history of the techniques for the care of premature infants and those who pioneered them, including the fascinating theory of neuro-plasticity. If you know what that means, you will want to know more. If you don't....well, you'll just have to read the book.
This is a family drama, an education in medical progress and an inspiring story about a courageous little girl named Larissa. If you are medically-minded, what else could you want in a weekend read?
Patricia Harman CNM MS, nurse-midwife and author of Arms Wide Open: A Midwife's Journey Arms Wide Open: A Midwife's Journey and The Blue Cotton Gown The Blue Cotton Gown: A Midwife's Memoir
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